Showing posts with label Hudson. Show all posts
Showing posts with label Hudson. Show all posts

Sunday, July 21, 2013

Hudson's First Surgery








 Hudson had his first surgery on 7/2/13 that week he was intubated. He had a PDA ligation. His PDA was larger than we had anticipated and we were optimistic that this repair would allow us to go home, for Hud  to grow and then come back for his complete repair.
Prior to this surgery we went in for a heart catheterization. This allowed the Dr.'s to get a closer look at what was going on within his heart.. Just like every procedure there are risks, risks that you don't think will happen to you. You would think I learned my lesson by now with everything going on with Hud, but I didn't think anything could happen to him....boy does that kid love to prove me wrong. They go through the Femoral artery during the procedure and there is a possibility of losing the pulse in that leg. Sometimes it will return, other times it does not.  Hudson came back to me with no pulse in his left leg. I was terrified. They would continuously come by, placing their fingers on his ankle..then checking his heartbeat with their stethoscope, trying to find the rhythm just knew Hud wasn't going to get it back, I thought "Great, now they're going to have to chop his leg off too". I was a nervous wreck for hours. A fellow (a Dr. not a guy) Elliot came in and turned on the Doppler (the same as they use while you're pregnant) to check again. "I think I have one"..he looked over at me in the chair, raised his eyebrows and turned up the volume. There it was, that same echo I heard while he was in my womb.. that broken little heart beating away. I put my head down and shielded my eyes with my hand. I let those hours of anxiety empty out. My nurse, Tonya said "it's ok mom, those are happy tears..we will take those". They were indeed some of the happiest tears I have ever cried. Thank God.
The next day after his surgery, Hud was able to tolerate 21% flow. That was a huge deal for us. Finally, he could survive on room air. We had worked for that since birth so we thought for sure we were on the right track. He had gone through a heart cath, and the PDA ligation so there was no way he would not improve....right?? We had been through so much. Hudson was 4 weeks old and it was time for him to start actually living. He has paid his dues, so he can only go up from here. Hud recovered quickly from the surgery and we could have sworn we were on track to going home.
 
 
 
Unfortunately we were wrong and the surgery didn't yield the results we expected. Hud still had to work hard, still hadn't gained enough weight, and was still somewhat struggling to exist.
 
 
They decided that we would try using a cpap mask to give him some extra support. The cannula wasn't giving him enough of a break. He hated the mask, and fought for the whole 2 hours it was on.
 
 That left them no choice but to take it off and replace his cannula. The next day July 5th, only one day after having his breathing tube removed they decided to reintubate. I fought that decision hard.. I ran through all the reasons why and why not to. I was so torn. I didn't think he had enough time without the support to prove himself. I didn't think he needed to have the tube back in so quickly...He didn't have enough time to be a baby, all the sedation and pain killers weren't even out of his system yet. But I agreed, if nothing else but to let his lung tissue catch a break to recover. I could find something positive to hold on to...and I did. Just like I always do. Just like you HAVE to.
 So they reintubated my boy and that's where we stood for 2 weeks.
 
 

Friday, July 19, 2013

Independence Day











  July 4th has so many meanings to all of us. Besides the obvious, this was also Hudson's first holiday. And anyone that knows me, knows that I take my holidays seriously! I wish we could have celebrated differently but we made the best of it. I picked up a little 4th of July bib..sad that I had to sacrifice having him decked out in stars and stripes. Sad that I couldn't see his eyes light up (like what the!!!) as Em lit her sparklers. The holiday I had planned was drastically different. BUT I made sure he celebrated however possible!





  An important day all by itself made extra special because it was also the day Hudson was freed of the ventilator. That terrifying day a week ago finally concluded with a liberating moment for my sweet guy.
 It was something that we had waited for...something that symbolized Hudson was "better". If he didn't have this breathing tube then he wasn't doing so bad. The moment came when they gathered around his bed. I was just beaming with excitement for him, it was radiating out of me. He was ready, I knew he was.


They put his nasal cannula back in his nose, put the air on high flow...and with a few quick movements the tube was pulled out. His eyes watering, his mouth opening and closing...licking his lips, rediscovering that part of his body as he was taking his own breaths unassisted for the first time in a week. I was so proud of my boy. So very proud.









              My little was FREE.


















 
 
 until my next post.
 
- one very happy mom
 
 
 


 




Saturday, July 13, 2013

Month One



Dear Huddy...my gorgeous bright eyed little man.


  This is not how I anticipated we would be celebrating...I hate that all your time has been spent in a hospital. It makes me sad to state your official address as 2100 Erwin Rd. Durham, NC...because that's not our house. I sit beside your bed all day and think about what it would be like to see you in your crib, instead. I wish we could be at home, in our living room giggling as we watch Em and daddy rough house. I want to be annoyed that she was playing too rough with you, or smile because she did something cute for you. I desperately want that to be the life for you.
   I want to show you the world outside of wires, tape, tubes, medicine, monitors, heel pricks, strangers and pain. I can't wait till the sun light hits your face for the first time...the wind blowing across your cheeks, fresh air and smells other than "hospital" infiltrating your healthy lungs.  I can't wait to show you all of the amazing things you have no idea even exist...everyday I am bursting with anticipation. I am ready for you to be home. I am ready for you to feel safe. I know you are too. I wish there was more I could do for you, this can't be how your life was supposed to play out....this one isn't fair.
   I hope we are able to experience all of those things and more together. You are the bravest one month old I have ever come to know. You have taught me more than I imagined. I am stronger than I give myself credit for, and I know your possibilities are endless. I can see things I never noticed, I can appreciate things I overlooked...and I can understand that of which I am afraid. So as your mother, teacher and student I am in awe of the little man you are already shaping to be. I love you more every day, and I grow prouder of you with every passing minute. You are my perfectly imperfect son. My solace. My fighter. My survivor.


Keep holding on.



Because, I love and need you.
Mom





Happy one month little love.

Saturday, July 6, 2013

Helping Hudson


   I have never been one to ask for help or expect gifts. I do though understand that some of our friends and family want to help and show they love and support us.  This amazing group of friends created this site to allow that opportunity. Well wishes and love are also always accepted! Thinking of our little man is enough for us. Thank you for loving us, and here's to mending Hudson's broken little heart. 

If you want to catch medical updates as they happen (since my blog is a little delayed). Click the link below. 
Help Hudson Here


Without the support of my family, friends and even strangers we wouldn't have made it this far. You keep us going when we emotionally have nothing left. I can never put into words how much this means to us.

Dionna, Shane, Emerson and Hudson

 (that is the first time I've been able to write all of our names together like that)..    :)